Support Groups for BEB

Essential Blepharospasm Research Foundation, Inc.
3155 Stagg Drive
P.O. Box 12468, Suite 110
Beaumont, TX 77726-2468
Phone: (409) 832-0788
Fax: (409) 832-0890
E-mail: bebrf@ih2000.net
www.blepharospasm.org

National Spasmodic Torticollis Association
P.O. Box 5849
Orange, CA 92863-5849
Phone/Fax: (714) 516-1824
Toll-Free: (800) HURTFUL (487-8385)
E-mail: PMNSTA@aol.com
http://www.torticollis.org/

Dystonia Medical Research Foundation
1 East Wacker Drive, Suite 2430
Chicago, IL 60601-1905
Phone: (312) 755-0198
Fax: (312) 321-5710
E-mail: dystfndt@aol.com
http://www.dystonia-foundation.org

United Cerebral Palsy Associations
1660 L Street, NW
Washington, DC 20036-5602
Phone: (202) 776-0406
Toll-Free: (800) 872-5827
Fax: (202) 776-0414
http://ucp.org/

National Organization for Rare Disorders, Inc.
P.O. Box 8923
New Fairfield, CT 06812-8923
Phone: (203) 746-6518
Fax: (203) 746-6481
Toll free: (800) 999-NORD (6673)
E-mail: orphan@rarediseases.org
http://www.rarediseases.org